So I have succumbed to the fact that If I want to go for a walk I need to have someone push me in a wheel chair. I have also realized what babies have been withholding from us and how much of a treat it is is to be pampered and pushed around (in a good way). I feel like, how can they possibly get a free walk and not say, "thank you!"
It's like the beginning of regression for me so it brought tears to my eyes to sit in the wheelchair. I feel myself getting weaker and weaker and needing help with more and more. I get out of breath really easily! Everything takes so much effort and is so much more work. The pain is manageable so that is good. I have started getting drained every day and this is done at home and helps tremendously with being able to breath better and be able to eat because the drainage makes for more room for everything. I am so glad I got the drain put in when I did, the process is pretty much painless and is over in 20 mins instead of having to go to the hospital to get everything done.
I try to visit with people when I can but I am exhausted and I have a lot of apt with nurses and occupational therapists.
I also have oxygen at home so I can use that when I need to which I think is also helpful.
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