Now that I have your attention! As you can see by the title of the post I am writing a romance novel in my spare time...Just kidding....the real reason for the title is that I am sleeping in a bed again and I just love the feeling of sleeping between sheets compared to my recliner with a blanket. It's the little things right?! The tumors on my sides aren't painful like they use to be and the fluid I had is gone, and the shooting pain down my leg is gone. Lots of things to be thankful for, I want to say the drugs are working, we will see what the scan shows in a few weeks, but we all know what matters is how I feel and in that regard I'm on no pain meds and that's a great thing.
Since my mom and I didn't get to go on our vacation to Tucson we have decided to make the best of the week and stay at her friends little cottage in middletown. Although we didn't have the greatest of starts to the week, we spent the entire day Monday in Boston at Mass General because they wanted to see me for my rash, so its a good thing we didn't go away. They ended up giving me a steroid which I haven't noticed helping yet except that it seems to be helping my appetite.
We did get to spend yesterday doing some christmas shopping, and I had wanted to get the kids build-a-bears for christmas with my voice recorded in them and we accomplished that mission. It's such a cute concept and I did the whole routine of getting their heart beat going and making the biggest wish in the world to put inside the bear, we all know what the wish would be and it was a little hard not to get emotional in the build-a-bear workshop but I held it together. Then I got to pick out the cutest outfits ever to accessorize them and spend way too much money!
The pills i'm on for the trial are causing the rash so thankfully this is my week off as of today from those. So hopefully between the steroids and not being on the pills we can get that under control. It is really painful on my face and of course makes me self conscious of what I look like. It's pretty easy to conceal the back and chest in the winter. They also told me to stay out of the sun so this rainy week in New England is actually better for me than the sunny week in Tucson I'm missing! Everything was meant to be I guess.
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